We pay support to a child diagnosed with a rare disease whose severity of a disability has not been determined (age group 0-15 years).
For a child diagnosed with a rare disease whose severity of a disability has not been determined, we pay support for the prevention of disability and to compensate for the resulting additional costs if the development of a disability would be unavoidable without prevention.
Rare diseases for which we pay support are: phenylketonuria, galactosemia, maple syrup disease, pyridoxine-dependent epilepsy, homocystinuria, lysinuric protein intolerance, glucose transporter defect, fructosemia, glutaraciduria (type 1 and 2), cystic fibrosis.
We pay an allowance of 161.09 euros per month.
How to receive?
Toetuse saamiseks tuleb sotsiaalkindlustustusametile esitada puude raskusastme tuvastamise taotlus.
To get the allowance, submit an application for determining the severity of the disability to the Social Insurance Board.
There are several ways to apply:
- submit a request in self-service through communication and notification
- send the completed and digitally signed application to the Social Insurance Board's e-mail address [email protected]
- send the application by mail to the address Paldiski mnt 80, 15092 Tallinn
- take the application to the customer service of the Social Insurance Board (customer service contact details)
Last updated: 18.05.2023